I’ve never been reliant on science. Faith presided easier for me, and where faith is still at the helm within my life, I have become more dependent on science in the past year then I ever imagined I would.
Finding a way to trust in science and technology to keep my son alive is something I never was prepared to do, yet being thrown into the situation of having a son with Type 1 Diabetes, I have little choice. I trust that the blood glucose monitor will deliver the most accurate results every time I poke my son’s finger and milk the blood out. Beyond that, I have been forced to depend on a lab derived substance to provide for my son, what his body decided it can’t.
Where I am grateful for these advances in science, and the freedom that my diabetic son is able to have because of the scientific advances we are lucky enough to have access to, most times I feel trapped, almost hostage to the science.
The emotions come and go in waves, one day a cure is around the corner and my heart skips a beat at the hassle my son will finally be able to leave behind, and a week later, there is another push back, an unforeseen delay. My heart sinks, and I muster up the strength to push forward and find a new way to walk hand in hand with Type 1 Diabetes, for the sake of my son and his health.
Everyday is a constant reminder to survive and not get my hopes up for fear of the disappointment soon to follow. This is when my faith kicks into overdrive, and I am reminded that science isn’t the end all be all. I have faith that my son will always be protected, I have faith that I will always know the proper steps to take in order to help my son traverse this shaky ground that is Diabetes. I have faith that I will find peace in the midst of the storm.
I am hopeful for the cure I pray for everyday, not just for my son, but for all the Type 1 Diabetics who have been living with this horrible disease for years. Type 1 Diabetics are so deserving of a cure, and I am stuck wondering, given all I know now, if I would always question the cure. When would I be content to not check Carter’s blood through the night, would I ever fully be able to trust that my son now, with the help of science, finally have a “working” pancreas?
This is where faith again fills the gap and helps me, when the day comes and we are faced with relying on a cure to maintain my sons health, I will get used to that new routine as I have this past year with Carter’s insulin regime.
Learning to trust technology has been difficult, but I know that if it meant a cure for my son I would be able to place my trust in anything that will alleviate the hassle that my son goes through multiple times a day, all just to be able to eat and stay healthy. I am grateful for the dedication that scientists, parents of T1 kids, and organizations like JDFR and The American Diabetics Association have made in order to advance a cure for our children. A cure is so desperately needed and would be the beginning of a new life for so many.