Diabetes Equals Aggravation

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It’s already been one of those days and the day has just started. Basically, diabetes equals aggravation from just about every angle. Most of the time it’s easy to look at the aggravation as part of the day, then there are the times when you get fed up with everything. I know that Carter feels this a lot and I am sympathetic to that, however at his age everything is a struggle. I know the majority of it is his age, yet it makes things more difficult when I’ve dosed him with his insulin and he refuses everything I offer him and I am left having to fill the carbs in an unhealthy manner.  I believe this frustration all started yesterday when the endocrinology nurse called me questioning some of the choices on Carter’s food log.  The doctor basically wanted Carter to eat more protein with his breakfast.  I do my best to feed my 21-month-old son a variety of foods, yet at 21-months, there is only so much he will eat.  Not to mention every meal time is a massive production and after one or two bites, he wants to be done and running around.  Hard to do when I have dosed him for 30 grams of carb and he’s actually consumed only 8 grams.  Once Carter is over the taste of something even if I hold him down, he will not eat it.  He will spit the food out, some days he loves eggs, some days he won’t touch them.  I find it amazing that with all the different types of protein available, the nurse actually battled me on the protein content of whole milk and greek yogurt.  With all that I have going on with managing Carter’s diabetes, I don’t have the energy to battle someone who doesn’t live this day in and day out.  The reality, I would love it if my son would eat eggs everyday, I would love it if he would eat everything that me, my husband, and daughter eat so that I wasn’t having to make different food for him most days, but you know what I would really love?  I really would love it if Carter didn’t have diabetes in the first place.  It’s frustrating when this disease enables someone to be so invasive into what you are doing all of the time.  I know they are trying to help, yet the reality is that I will make the eggs and Carter won’t be interested in them, or I will offer the bacon and he will refuse.  I also had to explain that what is written on his log is only what he has consumed, not everything I tried to offer to him that was refused.  I understand it looks bad that the log some days has the same foods on it, and that there are some meals where what he ate was 2 bites of yogurt, 8 oz milk, and half a cookie.  It’s difficult to explain to a doctor’s office who doesn’t live this 24 hours a day that a 21-month-old has a mind of their own and is at the age where they feel the need to fight for their opinions and feelings to be heard.  The battle and production at every meal is exhausting, on top of the exhaustion I am already struggling through all day long, so if Carter eats peanut butter and jelly sandwiches all day everyday for 3 days, at least he is eating, and if his blood sugars reflect good numbers, I honestly am not understanding the dilemma.  At this age, as the parent, though the intentions are good, I am just happy that Carter is eating anything.  Between teething, and shots, and carb counting, I am happy that Carter will sit and consume enough carbs to cover his insulin, no matter what he is eating.  I at least have the knowledge to understand that this is just a phase and eventually he will be eating more of a variety of foods.  I find it interesting and aggravating that I have to explain this to a doctor’s office.

6 thoughts on “Diabetes Equals Aggravation”

  1. It is extremely frustrating. Along with battling diabetes, we also have to battle children and their finicky taste buds. The frustration level is huge. My kids have four food groups, Mac & Cheese, peanut butter, yogurt, and spaghetti. And even then…

    Now compound that with having to dose for carbs not consumed, and I’m surprised your food log isn’t something like:

    Breakfast, 30 carbs
    1 bite peanut butter sandwich
    2 cups milk

    My daughter (the t1) is way more adventurous, and a better eater. I’m lucky that way. My son refuses everything and eats like a bird…

    1. Ugh Frank, I know! It’s so frustrating. Some days his log does look like that, the frustration really is in the fact that the endo office doesn’t understand it. I get questioned every time I submit my log to them. I could understand if they saw me dosing him for 2 cups of Ice Cream every meal…..but since that’s not happening I’m not understanding. My son as well, eats like a bird, hopefully as he gets older he will become slightly more adventurous.

  2. Alyson, I cannot even imagine how hard your days are. I have Type I diabetes and have for almost 15 years. Everyday is a struggle and even if you eat the same thing everyday and take the same insulin everyday at the same time, it’s all a crap shoot. There are hormones, stress, illness, heck even the weather, everything affects diabetes. And it sucks. I am 32 years old and pregnant with my second child and it’s hard. And Yes, doctors, nurses, no one gets it unless they live and breathe it. I get it and you are doing great. Just know that all of us D folks get it. 🙂 Prayers and hugs to you and your family.

    1. Thank you Lindsay! I love that my D family gets it and supports me! It helps me through everyday, and makes these trials less painful! Exciting about your second pregnancy!!! Congratulations, and you hang in there too! 🙂

  3. Try not to let the endos office get to you. They should be educating and supporting you not judging you. Kids are kids and they should understand it. Their role should be to help you feel more confident in caring for your child. Not judging and criticizing. It’s really difficult to let outsiders into your life on such an intimate level. Feeding your child is so much more then feeding your child. I know, my child has major feeding issues and has had feeding therapy since she was an infant. Some therapists have been very helpful and professional, some not. It’s just very hard to let people into your life and involve them in things that are typically decisions left up to the parent. My endos office is great. They absolutely understand how difficult it is to feed finicky children and they are 100 percent supportive. I can not say that a out our first endo. Not sure whats offered in your area but shop around and talk to other parents about recommendations if you need to. Remember its your child. You love your child. You’re doing a great job! You don’t need to achieve perfection just educate yourself and do the best you can.

    1. Thanks MJ! I absolutely agree, I am searching for another endo. I loved the first one we had, and am looking for an insurance carrier we can switch too, as much as I don’t want to deal with that hassle again, it will be worth it to get back to where we were and felt completely supported. It’s amazing the difference that makes, as you know being the caregiver and parent to a T1 child is stressful enough without the inside influences being judgy. You are so right when you said it’s so hard to allow people in on such an intimate level. It certainly is! Thank you so much for your comment and support! 🙂

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