Join a Diabetes trial, or not to join a trial?

Carter Sun
Carter at the park – 1 month before being diagnosed

One of the questions I have been burdened with post diagnosis is, to join a Diabetes trial or not to join a trial.  I don’t necessarily want my son or my family to become guinea pigs for science, but then am I impeding a cure for Diabetes?  It’s such a fine line, in my opinion, once diagnosed to battle.  It’s unreal, the way the endocrinologists will rattle off all these trials that you would be lucky to be a part of, but the reality of the situation is that you will be signing you and your family up for being poked and prodded in an effort to gain some semblance of an understanding as to why Type 1 Diabetes decided to rear it’s ugly head in my family.  At the end of the day my husband and I decided that our son gets poked enough and we will leave the Diabetes trials up to others who may be more ambitious then us.  I want to find a cure more then anyone, but realize that this early in “our” diagnosis, we have different things to focus on.  I need to be paying attention to preservation of shot sites in order to make sure our sons connective tissue isn’t impaired, and monitor his blood sugar and diet (which is a blast with a 19 month old….).  Being only 2 months in, I revel in the selfish stance we have taken by not placing our son in a trial.  I mean, if I’m being honest, since we left the hospital I feel like I am in a constant trial.  I never know how my day is going to go, we could have a wonderful morning with amazing readings, only to have a 3 hour nap that results in a catastrophic high glucose reading which leaves me scrambling to lower it with activity and water before the next blood check that I have to record, lest I be accosted by the endocrinologist for the high blood sugar reading, and discussing all I did wrong in order to have a level that high.  At this point, there is enough pressure on us, I believe our decision was the best for us at the present time….we are doing just fine being a part of the Carter Cheatham trial and trying to figure out the best ways to manage our son’s blood sugar with diet and exercise.

To find out more about Diabetes trials, you can visit the National Institute for Health to see what trials may be available.


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